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Friday, September 25, 2015

Crafting and the result of seeing the Gyno.

First up I thought you'd like to see the finished socks for Ian, he loves them and wanted to wear them again yesterday but I had to say no as they need to go to guild tomorrow to be displayed
Not the best photo, but he put them straight on despite not feeling well at the time and kept them on all day

and here they are keeping company with my pair in the same colours.
I think I need to learn how to do jogless stripes next time.

On the sewing front I'm working on a 1810's spencer in brown velvet and made the silly decision to line it with the dress fabric.   I'm regretting that now as the fabric is too soft , but it's too late to change it so I'm adapting as I go.   There will be photo's once I finish it.

Weaving - I've almost finished winding the mohair warp, just 44 wraps to go, but the spencer has a timeline so that needs to be finished first.   I do want to get it ready to go fairly quickly though for just in case I can't warp for a while.

Ok, if you're only reading for my craft stuff you may want to stop here, we're going to get into medical things now which some of you might not want to read.

As you know I've got endometriosis, I had to postpone my gyno appointment due to the flu, but I went yesterday morning with Dh to meet with Micheal East.  I took my colonoscopy pictures and a list of my symptoms as well.  He took a look at the colonoscopy photos and said he didn't think it was mucosal tissue, it looked like something was coming through the wall of the colon (which is likely endo).   Most of my symptoms can be pinned on the endo, that doesn't include the vertigo but pretty much everything else including the bladder issues and IBS, which as he said isn't really IBS, it's endo related bowel issues.

From the MRI he could tell it was stage 4, which is the worst version, stage 1 and 2 wouldn't be seen on an MRI anyway so I already knew it wasn't going to be the lighter versions.  He asked me what I was thinking on treatment and I said I was thinking surgery (laparoscopy) seeing as I can't take NSAID's anymore and hormone treatment isn't somewhere I want to go. 
He agrees, and then told me what he thought.  There will be a bowel resection to remove the portion that's been invaded, add to that the excision of all the endo and a hysterectomy; I didn't expect the last part but he said that I will have Adenomyosis and even if they get all the endo I will still have pain and will more than likely come back later to remove the uterus.  I'd rather get it all over and done with in one surgery so I'm going to get it done.  I'm keeping my ovaries, or at least that's the plan until they see what's in there so my hormones will continue to be produced which is good, and there will be no more periods, yay!

Recovery won't be fun, from the bowel resection it can take up to 9 months for the nerve pathways to heal properly apparently and I forgot to ask how long I'll be unable to drive and how long the hysterectomy takes to heal.  It'll all be done laparascoply though which should make things go a little faster.   I asked a lot of questions, but there's always something you forget.   I don't have a date yet, the surgeon needs to talk to the colorectal surgeon who I was seeing prior to this to find out if he does laparoscopy or not, if he doesn't then it'll be a different colorectal surgeon.  Once that's sorted they'll give me a date and I'll reorganise my life to suit.  Thank goodness I have health insurance, it means I'll get surgery earlier and I got to choose who I use for the endo side of things, which is important as I wanted someone who was experienced in using excision rather than ablation.  Excision is much better at getting rid of endo long term, with ablation it often comes back.

I will keep things updated on here as things go, wish me luck!


Wanderingcatstudio said... Best Blogger Tips

socks look great
I hope everything goes smoothly for you. But at least having a diagnosis provides a bit of relief!

Sonya said... Best Blogger Tips

Fingers crossed for a short wait and quick recovery! I'm glad to hear you finally have a diagnosis that fits (nearly) everything, and can now work towards proper treatment.

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